You are browsing the archive for 2013 December.

EUGOGO – ITEDS Collaborative Statement

December 9, 2013 in Blog

cooperationFollowing the ITEDS meeting in Vancouver in June 2013, to which a number of members of EUGOGO had been invited, there was a meeting of 9 members from the executive committees of both organisations.

All those present agreed that the development of better evaluation systems is of foremost importance in thyroid orbitopathy: to improve patient care, to progress research in this field, and to allow the potential for future collaboration between ITEDS and EUGOGO.

There is a pressing need for greater accuracy both in identifying disease phase and in recording change in severity, including change predictive of progression. Assessments adopted should undergo rigorous reproducibility testing and there should be patient involvement in the development of severity assessments, particularly to validate the meaningfulness of a given measure as a relevant patient outcome.  It was recognised that there are domains within thyroid orbitopathy, and that outcomes should also reflect change within given domains.

The logical next step is therefore to proceed jointly to work on improved assessment systems.

ITEDS Biobank

December 9, 2013 in Blog

ITEDS Biobank

ITEDS is pleased to announce the establishment of the ITEDS Biobank through the generous support of the ASOPRS Foundation.  Information about the Bank and how you can participate as a contributing institution or individual, is addressed through the drop-down menu above or through the link.

Institutions wishing to complete IRB forms may find updated documents through the downloads or ITEDS Biobank Link.