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International Thyroid Eye Disease Society


December 17, 2017 in Blog

The ITEDS BioBank continues to accept TED related orbital and eyelid tissues.  We are negotiating for the use of tissue samples for a research group and encourage ITEDS members to consider becoming and IRB-approved contributing center.  All relevant documents necessary for your local IRB approval can be found on this website, and can be modified appropriately for your own institutional requirements. If you have any questions, please feel free to contact Joanthan Dutton (jonathan_dutton@med.unc.edu).  For questions regarding obtaining shipping containers and information specific to the physical bank, contact Andrea Gaietto at Kryosphere (agaietto@kryosphere.com).   Jonathan Dutton

ITEDS Biobank Update

February 19, 2017 in Blog

ITEDS BiobankITEDS is pleased to announce that the ITEDS Biobank has been established through the generous support of the ASOPRS Foundation.  We have established a steering committee, research advisory committee, terms of reference and a standardized operating protocol and are finalizing a data storage protocol allowing users to survey demographic and clinical information concerning stored tissues through a secure portal.

Information about the Bank and how you can participate as a contributing institution or individual, is addressed through the drop-down menu above or through the link which allows contact with the medical director, Dr Jonathan Dutton.

 Pertinent forms necessary to complete an IRB application may also be downloaded from ITEDS Biobank Downloads.

4th International ITEDS Course and Symposium, London ENGLAND

December 27, 2015 in Blog

Photos from ITEDS June 2016 now online for viewing

4th ITEDS International Thyroid Eye Disease - Course and Symposium

Queen Elizabeth II Centre, Westminster, London, UK

Course:  Thursday, June 23, 2016

Symposium:  Friday and Saturday, June 24 and 25, 2016

ITEDS held a very successful course and symposium in June 2016 in London attended by over 300 delegates. Many clinical leaders from all over the World gave insight into the diagnosis, investigation and treatment of TED. The latest research from laboratory based to clinical investigations were presented and discussed.

We will publish the full program in due course – view events archive including photos from the event here

Jimmy Uddin ITEDS President

7th Annual ITEDS Teaching Course at AAO, Las Vegas, November 2015

December 24, 2015 in Blog

Las VegasITEDS hosted its seventh annual teaching course for comprehensive ophthalmologists and oculoplastics subspecialists at the American Academy of Ophthalmology (AAO) in Las Vegas in November, 2015.

The focus was evaluation of thyroid eye disease using ITEDS-VISA forms, concepts of disease activity and severity, and current medical and surgical management.  Case presentations were assessed by the audience with interactive dialogue with panelists.

The course was well attended by over 150 comprehensive ophthalmologists and oculoplastic surgeons from throughout the world. The AAO is the largest meeting in the world for eye surgeons.

The next course has been approved for Chicago in November, 2016.  Announcements about date and venue will be made closer to the date.

EUGOGO – ITEDS Collaborative Statement

December 9, 2013 in Blog

cooperationFollowing the ITEDS meeting in Vancouver in June 2013, to which a number of members of EUGOGO had been invited, there was a meeting of 9 members from the executive committees of both organisations.

All those present agreed that the development of better evaluation systems is of foremost importance in thyroid orbitopathy: to improve patient care, to progress research in this field, and to allow the potential for future collaboration between ITEDS and EUGOGO.

There is a pressing need for greater accuracy both in identifying disease phase and in recording change in severity, including change predictive of progression. Assessments adopted should undergo rigorous reproducibility testing and there should be patient involvement in the development of severity assessments, particularly to validate the meaningfulness of a given measure as a relevant patient outcome.  It was recognised that there are domains within thyroid orbitopathy, and that outcomes should also reflect change within given domains.

The logical next step is therefore to proceed jointly to work on improved assessment systems.

ITEDS Biobank

December 9, 2013 in Blog

ITEDS Biobank

ITEDS is pleased to announce the establishment of the ITEDS Biobank through the generous support of the ASOPRS Foundation.  Information about the Bank and how you can participate as a contributing institution or individual, is addressed through the drop-down menu above or through the link.

Institutions wishing to complete IRB forms may find updated documents through the downloads or ITEDS Biobank Link.

Vancouver Thyroid Eye Disease International Symposium

October 19, 2013 in Blog

image_1722ITEDS hosted its 3rd international conference on Thyroid Eye Disease (Graves' Orbitopathy) in Vancouver, Canada on June 28 and 29, 2013.

The sold-out meeting focussed on the latest clinical and basic science research and featured both invited speakers and open papers and posters.  Our speakers and registrants represented 25 different nations from five continents and included eight medical and surgical specialty groups.

One of ITEDS' goals is to foster cooperation amongst various organizations studying this disease in order to share resources and increase collaborative research.  This symposium reflected that impetus, with the scientific planning committee, speakers and registrants being comprised of members of ITEDS, the European Group on Graves' Orbitopathy (EUGOGO),  American, Asia Pacific and European Thyroid Associations (ATA, AOTA, ETA)  and the Orbit Society.