EUGOGO – ITEDS Collaborative Statement

December 9, 2013 in Blog

cooperationFollowing the ITEDS meeting in Vancouver in June 2013, to which a number of members of EUGOGO had been invited, there was a meeting of 9 members from the executive committees of both organisations.

All those present agreed that the development of better evaluation systems is of foremost importance in thyroid orbitopathy: to improve patient care, to progress research in this field, and to allow the potential for future collaboration between ITEDS and EUGOGO.

There is a pressing need for greater accuracy both in identifying disease phase and in recording change in severity, including change predictive of progression. Assessments adopted should undergo rigorous reproducibility testing and there should be patient involvement in the development of severity assessments, particularly to validate the meaningfulness of a given measure as a relevant patient outcome.  It was recognised that there are domains within thyroid orbitopathy, and that outcomes should also reflect change within given domains.

The logical next step is therefore to proceed jointly to work on improved assessment systems.

5th Annual ITEDS AAO Course on Thyroid Eye Disease, New Orleans

December 9, 2013 in Blog

new orleansEleven members of ITEDS presented at our 5th annual course chaired by Mark Lucarelli at the AAO on Monday, November 18, 2013 in New Orleans.  The course provided an overview of current evaluation and management of TED and consisted of lectures, case presentations, panel discussions and audience participation.

More than 85 ophthalmologists from around the world attended this course, which has been increasing in enrollment each year.

The American Academy of Ophthalmology is the largest meeting in the world for eye surgeons.

ITEDS Biobank

December 9, 2013 in Blog

ITEDS Biobank

ITEDS is pleased to announce the establishment of the ITEDS Biobank through the generous support of the ASOPRS Foundation.  Preliminary information about the Bank and how you can participate as a contributing institution or individual, is addressed through the drop-down menu above or through the link.

Vancouver Thyroid Eye Disease International Symposium

October 19, 2013 in Blog

image_1722ITEDS hosted its 3rd international conference on Thyroid Eye Disease (Graves’ Orbitopathy) in Vancouver, Canada on June 28 and 29, 2013.

The sold-out meeting focussed on the latest clinical and basic science research and featured both invited speakers and open papers and posters.  Our speakers and registrants represented 25 different nations from five continents and included eight medical and surgical specialty groups.

One of ITEDS’ goals is to foster cooperation amongst various organizations studying this disease in order to share resources and increase collaborative research.  This symposium reflected that impetus, with the scientific planning committee, speakers and registrants being comprised of members of ITEDS, the European Group on Graves’ Orbitopathy (EUGOGO),  American, Asia Pacific and European Thyroid Associations (ATA, AOTA, ETA)  and the Orbit Society.

Please click on the drop down menu (June 2013 Vancouver Meeting) above right to review the program syllabus and to see feedback about the meeting.